Heart Kids South Africa has openings available for South African families to participate in a study involving Heterotaxy Syndrome and other congenital heart defects, conducted by an American University.
The Cardiovascular Genetics division of this university is studying the genetics of heterotaxy syndrome, a rare condition consisting of abnormal organ development and positioning, and congenital heart defects.
THIS STUDY WILL NOT REQUIRE PARTICIPANTS TO TRAVEL TO THE USA.
Should you be interested in participating in this study, please send us an email to email@example.com or SMS “HS Study + email address” to 074 120 0279.
PLEASE NOTE: WE WILL NEED THE INPUT FROM YOUR TREATING DOCTOR AS WELL.
We are asking persons with or family members of persons with Heterotaxy Syndrome and other congenital heart defects to participate in a study gathering information to better understand the conditions and genetics behind them.
Who is eligible to participate?
Persons are eligible to participate if they have heterotaxy or related congenital heart defects or are a family member of someone with these conditions.
What would I have to do?
Persons eligible are asked to provide a blood sample and answer a few questions about their family and their health history.
Should you be interested in participating in this study, please send us an email to firstname.lastname@example.org or sms “HS Study + email address” to 074 120 0279.
REMEBER TO SHARE THIS OPPORTUNITY WITH OTHER AFFECTED FAMILIES AS WELL!