Be heard. Add your voice.

Heart Kids South Africa is the resounding voice of the pediatric congenital heart community. Our voice is strengthened by the involvement of all of those who share our mission. Those who share their stories, and advocate on behalf of the people in their lives affected by congenital heart disease. Each one of us has a story to tell. These stories make a great impact when told the right way to the right people. Let us help you advocate to fellow patients, doctors, researchers and policymakers. These are the issues that Heart Kids South Africa is currently working on:

Medical Passport for Children with CHD

1) Download. 2) Make changes to the text to suit the purpose of the passport. 3) Print and ask your child to help you add pictures to the small picture blocks on the left. Speak to them about the importance of advocating for themselves.

Download

CHD Fact Sheet
Use this tool to shape your story or give to your listener

Download

Telling your Story
Tips and suggestions to help you make an impact

Download

Creating a Personal Leave Behind
Create your own handout that will certainly make an impact!

Download

Mandatory New Born Screening
1) Print and cut in half. 2) Get friends and family to sign. 3) Submit Petitions

Download

Mandatory Referral of Potential Organ Donors
1) Print and cut in half. 2) Get friends and family to sign. 3) Submit Petitions

Download

South African Stats on CHD.

Empower yourself with information regarding the state of Paedatric Cardiac Care in South Africa.

SMS Join + your email address to 33 000.

SMS is charged at R1.50. We will respond with a welcome-to-the-family package.