When Everything Changed
The moment I learned that Okwam had two significant holes in her heart, our lives changed forever. What had been ordinary days of motherhood suddenly became filled with medical terms, urgent referrals, and overwhelming fear. An appointment was scheduled at Red Cross Hospital for July 2023, and we travelled there by ambulance — my heart heavy with uncertainty.
When we arrived, Okwam was clearly unwell. Her tiny nose was blocked, her forehead hot, and her breathing laboured. Sitting in the waiting room, I shared my fears with the doctor, but as she examined my baby, I could no longer hold back my tears. Shock and heartache flooded over me. We were admitted to an isolation ward, and in the midst of my distress, I clung to God’s promise that He would never leave nor forsake us. I knew I had to be strong — for Okwam and for myself.
After two days, we were discharged, only to return the following week. This time, we were sent through emergency and admitted again. Okwam was scheduled for surgery on 1 August. But just as we prepared ourselves emotionally, a taxi strike brought everything to a halt. The operation had to be cancelled. The disappointment was crushing, yet I reminded myself that patience was part of this journey too.
In the waiting, in the fear, and in the uncertainty, hope became the anchor that held us steady.
Seven Months Old and So Brave
At last, the strike ended and Okwam’s surgery was rescheduled for 14 August. She was seven months old. The day arrived with deep anxiety. The operation took longer than expected, and as the hours passed, fear overwhelmed me. I experienced a panic attack, my thoughts racing with worst-case scenarios.
Then came the moment of relief — seeing my baby wheeled into ICU after surgery. The indescribable gratitude I felt in that instant cannot be put into words. We spent six days in ICU before returning to the ward, and eventually, we were discharged with Okwam’s heart repaired.
Today, at 18 months old, Okwam shines with life. Her bright eyes and brave spirit reflect the mercy and grace that carried us through. She is a little empress — strong, resilient, and ready to conquer whatever lies ahead. We later returned to Red Cross Hospital for her pacemaker procedure, another reminder that this journey requires ongoing courage.
I remain profoundly grateful to the doctors and nurses whose dedication made her recovery possible. Their care changed our story. HeartKids SA also became a source of warmth and strength during our darkest days, reminding me that I was not alone.
Most of all, I am thankful for my family — my strength in weakness and my joy in sorrow. Together, we have walked this road of resilience and faith.
Okwam’s story is one of hope, community, and unwavering belief that even the smallest hearts can overcome the greatest trials.
Lihle Kweleta
